Raman Kumar says a federal plan to cover diabetes medications and supplies would be 91Ƶphenomenal91Ƶ because she91Ƶll finally stop worrying about how to pay for her care.
91ƵIt91Ƶs so expensive,91Ƶ she said of replacing a $100 sensor for her continuous glucose monitor every 10 days.
91ƵMy extended health coverage through my husband91Ƶs work doesn91Ƶt even cover that,91Ƶ Kumar said. 91ƵLast month I skipped half the month because you just don91Ƶt want to go and spend that money. It91Ƶs $100 every time you walk into a pharmacy.91Ƶ
Kumar has Type 1.5 diabetes, due to symptoms associated with both Type 1 and Type 2 diabetes.
91ƵI take Metformin, which is prescribed for Type 2 diabetes, and insulin before I go to bed, which is typically prescribed for Type 1,91Ƶ she said from Surrey, B.C.
She91Ƶs concerned that her symptoms, including dizziness, will worsen if she doesn91Ƶt maintain her unaffordable care.
On Thursday, federal Health Minister Mark Holland tabled a bill that paves the way for a universal drug plan, starting with coverage for birth control and diabetes drugs and supplies. The pharmacare deal is a key component of the supply-and-confidence deal between the governing Liberals and the NDP. Alberta and Quebec have said they want to opt out in favour of spending federal money on their own plans.
Holland did not provide details about coverage for supplies but told a news conference in Ottawa that diabetes patients have enough to worry about besides the cost of their care and that some resort to reusing syringes, which he said is 91Ƶnot right.91Ƶ
91ƵWhat happens to that person who doesn91Ƶt take their medication? They wind up, potentially, with an amputation, with a stroke, with a heart attack. They walk out, potentially, with potential kidney problems,91Ƶhe said.
Doctors and advocacy groups hailed the plan as they wait for specifics on coverage in Canada, which is alone among countries with a universal health-care system in not including medications.
Dr. Tom Elliott, medical director of a diabetes clinic in Vancouver, said one of his patients was hospitalized last year because he could not afford to buy medication after paying for groceries.
91ƵBetween putting food on the table and taking his medications he chose food on the table. And the next thing you know he91Ƶs in hospital, almost dying from severe diabetes complications,91Ƶ he said.
The endocrinologist said that while British Columbia has the country91Ƶs best coverage for low-income patients, many do not meet the deductible criteria so they skip their drugs or don91Ƶt take them at all.
91ƵSo what do you do? You skimp and you skip or you just don91Ƶt afford them at all. It91Ƶs terrible.91Ƶ
Elliott said that along with insulin and other drugs, continuous glucose monitors and insulin pumps are essential and that coverage for these items would make a life-saving difference to patients who will have 91Ƶfair and just treatment.91Ƶ
91ƵI91Ƶm optimistic that they91Ƶre covered. And if they91Ƶre not then really it91Ƶs despair and we91Ƶre back at square one. You have to cover them. They91Ƶre life-changing, difference-making, game-changing devices.91Ƶ
Diabetes Canada called the plan a 91Ƶmonumental step91Ƶ that would enhance the well-being of more than four million people living with diabetes, adding it will continue advocating for full and timely access to medications and devices.
Jessica Diniz, president of the Juvenile Diabetes Research Foundation, said every province has limitations on coverage and that the average out-of-pocket cost for Type 1 diabetespatients is about $18,000 a year.
While continuous glucose monitors help avoid complications, Diniz said a price tag of between $3,000 and $4,000 means many people must do without them, and the replacement cost of sensors every few days is another deterrent.
Diniz, whose group advocates for those with Type 1 diabetes, said researchers are trying to determine why Canada has a higher incidence rate of that condition than some other countries.
91ƵNorthern Hemisphere countries seem to have higher rates. We91Ƶre looking at Vitamin D, the food we eat. The rate of diagnosis is growing at four per cent a year compared to three per cent in the U.S. That doesn91Ƶt sound big but it adds up and it91Ƶs significant,91Ƶ said Diniz,adding that the average age for diagnosis in children is 10.
91ƵBut I91Ƶve met families whose children were 18 months or two years old. It91Ƶs the whole family that91Ƶs going through this.91Ƶ
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