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Self-advocates 91Ƶsad, scared, angry91Ƶ over revisions to assisted-death legislation

Bill C-7 was expanded to include access to medically assisted death for non-terminal conditions
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Parliament Hill is shown in Ottawa on Wednesday, March 11, 2020. The Trudeau government has agreed with the Senate that Canadians suffering solely from grievous and irremediable mental illnesses should be entitled to receive medical assistance in dying 91Ƶ but not for another two years. (THE CANADIAN PRESS/Sean Kilpatrick photo)

Self-advocates are expressing disgust over recent changes to federal Medical Assistance in Dying legislation.

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In short, they say last month91Ƶs expansion of Bill C-7 to include people with non-terminal conditions is a violation of human rights 91Ƶ one that leaves them 91Ƶsad, scared and angry.91Ƶ

In a statement distributed Tuesday (April 13), (SALN) officials 91Ƶ representing a network of self-advocates from seven Lower Mainland and Vancouver Island organizations 91Ƶ say the move 91Ƶhas further devalued people with disabilities and many other groups of Canadian citizens,91Ƶ and puts many people with disabilities at risk.

The legislation revision, the statement continues 91Ƶ citing United Nations human-rights experts 91Ƶ is based on ableist assumptions about the quality and worth of the life of a person with a disability.

Canada first legalized assisted dying in June 2016 (it came into force in Quebec in December 2015). In September 2019, the Superior Court of Quebec ruled that parts of the laws on MAID were unconstitutional, namely, the requirement that a patient91Ƶs natural death must be 91Ƶreasonably foreseeable91Ƶ in order to qualify for the service. Government was given six months to amend it.

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Online consultation followed, including regarding whether new hurdles should be imposed to prevent abuse and protect vulnerable people from being pressured into ending their lives. The government91Ƶs survey also asked whether the law should be expanded to include allowing people who fear losing mental competence to make advance requests for an assisted death.

The latter aspect prompted one SALN member to describe the new bill as 91Ƶfrightening.91Ƶ

91ƵIf someone is not well (mental health) and feeling they are ready to die 91Ƶ they are vulnerable 91Ƶ this is dangerous.91Ƶ

The revised bill does include higher hurdles for those not near death, including a minimum 90-day period for assessments of their requests for an assisted death. They will also have to be able to give final consent immediately before receiving the procedure. As well, people suffering solely from grievous and irremediable mental illnesses will have to wait two years to gain the right to seek medical assistance in dying.

Nolda Ware, SALN supporter and manager of family support services and person-centred practices for UNITI 91Ƶ a partnership of three organizations, including Semiahmoo House Society, that advocates for and supports people with disabilities and their families 91Ƶ expressed concern around influence and coercion, and said the system has no right to make judgment on a person91Ƶs quality of life.

And while an Ipsos survey conducted for Dying With Dignity Canada in January 2020 suggested overwhelming support among Canadians for expanding access to medically assisted dying, SALN chair Michael McLellan described the revision, given royal assent on March 17, as 91Ƶa huge step backwards.91Ƶ

91ƵIt clearly tells us how they do not value people with disabilities/mental illness,91Ƶ he said.

Government committed to setting up an expert panel to advise on safeguards and protocols that should apply to people with mental illnesses, and rejected a Senate amendment to allow people who fear losing mental competence to make advance requests for an assisted death. The latter issue and other unresolved matters are to be reviewed by a joint parliamentary committee.

SALN91Ƶs newsletters are distributed across the province, including to federal representatives. The network, formed in 2019, aims to 91Ƶpromote a good life through positive and informed: actions, networking, and advocacy.91Ƶ

- with files from Canadian Press



tholmes@peacearchnews.com
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Tracy Holmes

About the Author: Tracy Holmes

Tracy Holmes has been a reporter with Peace Arch News since 1997.
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