After months of trying to find funding for medicine that could change six-year-old Landen Alexa91裸聊视频檚 life, he was denied coverage from B.C. Pharmacare for a third time.
91裸聊视频淚t91裸聊视频檚 just me fighting right now. The media is over it, and I have been brushed off by [Premier] John Horgan and [Health Minister] Adrian Dix,91裸聊视频� said Jillian Lanthier, Landen91裸聊视频檚 mother. 91裸聊视频淭hey won91裸聊视频檛 acknowledge me as a human being.91裸聊视频�
Last June, Landen, a Sooke resident, was diagnosed with systemic juvenile idiopathic arthritis, more commonly known as SJIA, a disease that causes his body to attack itself, leaving him with crippling muscle and joint pain and with virtually no immune system.
The disease is so severe, even a common head cold can be potentially fatal for him.
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The medicine Landen is on now is no longer effective, and the only option for treatment is a drug called Ilarus, which is going to cost Lanthier $19,000 a month. It91裸聊视频檚 not covered by B.C. Pharmacare.
Landed spent Christmas Eve in hospital, screaming in pain from the disease, and yesterday began chemo to help manage the pain.
91裸聊视频淭hey almost had to cut his shirt off because he had no mobility in his arms,91裸聊视频� Lanthier said.
She explained that Landen has good days and bad days, but lately has been consistently coming home by noon in crippling pain.
91裸聊视频淭he chemo will hopefully help a bit, but I just look at it as 91裸聊视频楬ere you go Landen, another Band-Aid91裸聊视频�,91裸聊视频� Lanthier said.
91裸聊视频淚91裸聊视频檓 feeling very angry and sad.91裸聊视频�
In response to Landen91裸聊视频檚 battle, by the Cassie and Friends Society for Chieldren with Juvenile Arthitis and other rehuematic diseases. So far, it91裸聊视频檚 received more than 8,000 signatures.
Lanthier added that she is frustrated because she has watched medicine, , recently get covered by the B.C. Health Ministry, but can91裸聊视频檛 get a response from anyone to find funding for Landen.
91裸聊视频淚t91裸聊视频檚 great that those types of things are free for everyone in the province now, but I am sitting here and my son is fighting to live a normal life, and no one will even acknowledge us,91裸聊视频� she said.
There are only approximately 10 children in B.C. who are battling the same disease as Landen, and the medicine could greatly improve his quality of life, helping with pain and allowing him to make fewer hospital visits.
91裸聊视频淚91裸聊视频檓 not giving up, and I91裸聊视频檓 not taking no for a third time as their final answer,91裸聊视频� said Lanthier. 91裸聊视频淚 have a lot more fight left in me, I just don91裸聊视频檛 know which avenue to take yet.91裸聊视频�
Horgan, who is also MLA for the Sooke region, did not return calls for comment.
editor@sookenewsmirror.com
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